Episode 012 - Kim's Parent's Perspective

The Russell Silver Syndrome Podcast

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Episode 012 - Kim's Parent's Perspective

Kim

Apr 11, 2021

Kim is joined for this episode by her parents as they discuss how they coped as parents of a child with Russell Silver Syndrome (RSS) born when knowledge of the syndrome was far more limited than it is in recent years.

They discuss what choices they faced and the decisions they made with the information that was available at that time. They will recount memories of Kim's childhood that they feel shows her personality and independence.

Do they have any regrets with the choices they made for their daughter?

If Kim was born in recent years would they try any treatment options or avail themselves of support that families have the options to use now in raising an RSS child?

What advice do they have for families with young RSS children now?

Learn and listen to more episodes about this rare form of Dwarfism at www.russellsilversyndromepodcast.com.

Discussion about this podcast

The Russell Silver Syndrome Podcast

The Russell Silver Syndrome Podcast focuses on one of the more rare types of Dwarfism, medically known as Russell Silver Syndrome or Silver Russell Syndrome - or simply known as RSS.

The podcast covers a range of topics that gets to the heart of the challenges and issues that people, from across the globe, with Russell Silver Syndrome, face daily.

So whether they have the syndrome, are a parent or family member of someone with the syndrome, or have an interest in learning about RSS, you can discover how they navigate through life as they share the community’s diverse perspectives.

From finding love to being diagnosed, the podcast aims to provide support and signposting to members of the RSS community. To find out how with determination, strength and the ability to adapt as they live day-to-day despite the challenges our everyday lives can pose and our varied medical experiences.

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